A fundraising program inspired by Gordon Murray
Gordon and I were so fortunate to have received the extraordinary care at UCSF. What we recognized, though, is that brain cancer is fundamentally different from other cancers in its effect on family and caregivers. Brain disease presents enormously difficult challenges, from practical matters (driving, mobility, effects of medication) to highly charged emotional issues (personality and cognitive changes, the looming prospects and trajectory of the disease).
Gordon wanted more than anything for UCSF to find the cure for brain cancer, and for the treatment plans to incorporate the concerns of family and loved ones. I am continually inspired by the response of UCSF to the questions we have raised, and am delighted (as I know Gordon would be) that the Neuro-Oncology Gordon Murray Caregiver Program will make this difficult experience a little easier to bear.
"I can’t say enough good about that experience". - Gordon Murray
The quality of UCSF’s scientific endeavors, which perpetually push boundaries, sets UCSF apart from other institutions. It is imperative that the same level of passion and resources are dedicated to supporting an individual patient, family and caregiver team.
Through the UCSF Neuro-Oncology Gordon Murray Caregiver Program, UCSF has the opportunity to enhance the patient and family experience by:
- Providing for a dedicated patient relations liaison to ease the anxieties that can accompany the care experience
- Creating a Family Advisory Council to identify the most necessary and helpful programs
- Hiring additional staff (social workers, nurse specialists, neuro-psychiatrists) to assist patients and caregivers with the psychological and pharmacological issues that arise
- Providing on-going training to UCSF faculty and staff to build open and strong patient- provider relationships, allowing comprehensive communication about expectations, opportunities and decision-making
- Incorporating the work of the UCSF’s Osher Center for Integrative Medicine, capitalizing on engaging the patient's body, mind and spirit in the healing process